ADDING A RAY OF HOPE:
MAKING EVERY AUTISM KID… LOOK LISTEN FEEL UNDERSTAND COPY , TALK AND SOCIALISE
Aakaar Clinic at Byculla West
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Autism Dr Mumbai : Dr Kondekar Santosh
at http://www.aakaarclinic.com at Byculla West
free whatsapp Helpline for parents of autism kids 91-9869405747
ask any question – free! CLICK HERE > NEW: LATEST INTERNATIONAL DIAGNOSTIC CRITERIAS FOR AUTISM ADHD
*** AUTISM IS CEREBRAL PALSY?
Technically yes, it is a developmental brain disorder that usually doesnt worsen and often is related to one time neurological insult which may be genetic or environmental affecting specific parts of the brain that deal with senses, communication, social behavior and cognition; unlike CP where the primary damage is likely to be related to motor or muscle action control.
So technically autism can be equated to social- sensory Cerebral palsy.
once we know what and how, we can really understand why and how a multidisciplinary approach is likely to be positive in improving outcome, provided it is time to time goal directed. WHAT IS CP OR CEREBRAL PALSY? AND HOW AUTISM CAN BE SIMILAR TO IT?
Brain : Human and Humanoid PC
Sense and action:
Brain structure is made of multiple neurons that go from brain to various tissues including senses like skin, eyes, hearing, balance, smell, touch, feel and also to muscles of action. Also the millions of neurons do travel from tissues of sense and action to the brain. So there are many neurons that give input and there are many neurons that give output.
There are many neurons that connect in between for coordination and there is also a sensory processing unit. All this can be considered something parallel to a computer where keyboard and mouse are sensory part and monitor -display- speaker assembly is a motor / action part and CPU of PC is a sensory processing centre.
Human brain is much more complex than this. Despite this, this is the best way to understand how brain works.
So the whole neurology is primarily between sense and action; and sensory processing unit making sense of it.
The software and hardware of brain decides how slow fast or age appropriate brain may function.
Its an electrical chemistry that keeps various parts of brain continuously functioning.
This functioning of brain is needed for learning, developing skills, building intelligence and structured processing and performance more like algorhythms of artificial intelligence for socialisation of humanoid robots.
Learning-skills –intelligence are never ending depending upon the attention oaid to inputs for the same. Each person is a similar looking hardware and grossly unique edition of new software.
Before we know what is autism, I feel one should know and understand a cerebral palsy. Cerebral palsy is a case usually due to some one time irreversible insult /damage or accident to a developing brain.
By insult it’s meant that something not so normal has happened to a developing brain. It can be as simple as child not crying immediately after birth or at times trauma of a forceps or vacuum delivery or premature labour pains or conditions affecting blood circulation, oxygen, sugar, electrolytes etc reaching the developing brain causing a minor or at times major defect in structure or function of brain.
So for all technical reasons, when we say a child has cerebral palsy, we mean a one time damage to developing brain affecting the motor or action group. Often at least two domains of development are affected in cerebral palsy. What we mean by domains of development is the various areas of child development as below: 1. Gross motor / large joint actions, 2. fine motor- small joint actions, 3.language-speech and communication 4.socialisation
So in cererbral palsy, it is must that the child or person will have signs related to muscle actions, the form of hypotonia or hypertonia interfering some way with day to day life. How severely it affects day to day life will be decided by the extent of insult or damage as manifested. Considering the computer analogy we may see this as monitor damaged/deformed , display damaged/deformed, screen is having errors of visualisation, flickering, bite loss, black line, dancing screen, blurred screen etc
All these amount to cerebral palsy.
This means a child with cerebral palsy may have deformed limb or its part; deficit in movement of one or may muscle groups or senses- vision / hearing etc or nerves; or a defective or altered performance or appearance which doesn’t worsen but is not good for a good quality of life.
There always need not be a visible damage or defect. Performance not optimum for the age and stage of life is also likely to be cerebral palsy; more so when no other easily explainable reason is found.
Diagnosis of autism is very simple. So is severity. What is difficult is ruling out other autism like diseases which may have different line of treatment.
Severity of autism is best classified as independent partially dependent and complete dependent with verbal/ nonverbal and with or without neuropsychiatric issues. Younger the age of diagnosis it’s worthwhile to make the child near normal in three months with early meds. www.facebook.com/cdcmumbai
What is standard management or care of autism?
1. Define the problem, Donot delay visiting a neuro ped doctor. Agree the age inappropriatness in your kid. confirm on free whatsapp chat with dr kondekar 91-9869405747. Donot rely on the diagnosis by therapists / psychologist or counselors alone, as they can only manage the components that are seen and wont be able to diagnose or treat the neurological basis or associated symptoms which may have a neurological / developmental or metabolic issue. They may not be aware of diagnoses beyond their speciality.
1. Therapy can be continued pending diagnosis, but delaying diagnosis and evaluation by ped neuro Dr is not advised.
2. Rule out other causes: often this is missed by many doctors that causes similar symptoms. Child may be mistaken as minor delay in communication or speech; or just as minor behaviour issue.
3. divide the issues in priority and short term easy to achieve goals .
4. Work on these with the help of neuro Ped Dr who may suggest some medicines as per international standards or as per experience which help the child be receptive for therapy, by helping sit quiet give eye contact understand socialise, integrate senses and learn from brain to muscles from sense to action.
Therapy works like a train attaching trolleys next to each other so that they can be of help in building milestones and base of learning. Medicines work like train engine making the child respond a lot faster to therapy. Medicines and therapy do require titration.
5. There are different therapists possible for every abnormality u notice but practically in many places its not possible to have every type of therapist. So continue with whatever therapist u can afford. Therapy is important to habilitate the child. However, Many kids may improve without therapy too – takes years and we lose time, but waiting and watching beyond 100 days is not recommended.
6. Whatever route u chose, your specialist should show a definite change in 100 days; if not rethink, revise the diagnosis and management plan with your ped neuro DR.
7. Dont accept a handicap easily and give up hopes of improvement. any time clueless, Whatsapp Dr Kondekar for free chat 91-9869405747
8. Every child has potential and right to improve.
Training child to learn action language [ as is done for deaf children] will take the child away from verbal communication, as we are stimulating motor/action cortex of brain to take over speech cortex. #drSK#Pedneuro#CDC
At times its important to break this take over of action cortex over speech cortex; because if not tackled in time, child will never be able to talk if he is totally into action language.
Habilitation or re habilitation? :
Habilitation is a process aimed at helping disabled people attain, keep or improve skills and functioning for daily living; its services include physical, occupational, and speech-language therapy, various treatments related to pain-spasticity management, and audiology and other services that are offered in both hospital and outpatient locations. Habilitation requires neurological connection to develop mature and improve, from scratch. Neuromodulators are group of drugs that help achieve it faster though never close to normal. Normal habilitation of children below five years in affected in kids with developmental disorders.
Rehab is rehabilitation to gain or develop or improve lost skills
*How much shall we expect from our autism kid?*
Expectations, let’s rename as having newer capabilities is never wrong. We should plan some steps to reach that goal. Suppose we make ten steps to achieve that expectation, we can start working from first.
Younger the child, immature is the brain, easy to train and shape. Elder children have their own maturity so need a different strategy to tackle the expectations.
At times we do have some medicines that may make the brain little immature and receptive and then we can train the child to achieve appropriate goals.what is the age of Ur child and what expectation u r having. No expectations should lead to stress spoiling peace of mind.
– Dr Kondekar
Violent traits in autism?
Violent personality rage phenomena obsessions and behavioral issues are often mixed with autism in a good number or cases. The personality may run in families. There is no point in blaming each other or kid. The frequency and severity of these episodes will help us decide medicines which improve the quality of life with negligible side effects. It’s worth while to save a family from stress which lasts for years than getting wary about side effects which are meagre. Free WhatsApp advice and discussion at 91-9869405747
No Child is hopeless; when you dont see a change; its our duty to introspect and change the strategy .
Giving up gains nothing; persistence pays.
Expect a new positive change every month; note it down. Nutrition of brain and child; diet and quality of life of parents both are equally important for positive outcomes.”
Special children’ is often a term used for children with issues of neuro development, social communication and neurobehavioral adjustments.
Often these kids may look normal and settled in day to day living;but a great majority of these kids need emotional, social and therapy support to cope up with stress, milestones, education, social survival and neuro- medical issues including neuro disabilities.
Prima facie these issues appear like disability or a handicap like situation adding a lots of stress to the child , parent and family, affecting quality of living. book appointment
These children range from personality traits of mild autism to non verbal severe autism; terrible toddler tantrums, to attention deficit or hyperactivity issues. Soft Neurological problems affecting gait, grips, concentration and defective sensory processing of stimuli/ events are commonly associated. These issues ,may be noted in a child in varying proportions, alone or mixed. Often these issues cause or are associated with learning disability and or social disturbances of adjustments.
Some of these kids do have documentable brain damage , power deficit , tone issues , deformities or seizures. Many need not have these issues. Some do have genetic basis, many wont.
*These all cannot be easily understood unless a detailed neuro pediatric evaluation is done for these kids before we plan a random referral advice or suggestion.*
With appropriate diagnosis and zeroing down the key areas of improvement in a given child,in a time scaled fashion can help the therapist and neuropediatrician plan together a collective approach for tackling the various issues mentioned above.
A variety of specialists apart from above may be frequently consulted for advice, therapy, counselling and training with continued occupational therapy and pediatrician assessment. Speech therapists, physiotherapists,educators, remedial educationists, counsellers, psychologists do have a role when indicated.
With regular directed therapies like, NDT Neurodevelopmental therapy,SI Sensory integration, ABA i.e. applied behavioral analysis and adjustments with time discipline, conditioning of events ,show results when individualised.
Some medications do help in a good number of children. An IQ test , BERA and EEG, MRI brain and genetic studies may be needed in some cases.
In our experience we see major changes in speech behavior power tone and social adjustments in 100 days of goal directed therapy.
Please do not hesitate to consult for detailed advise, understanding, treatment and therapy.
pedneuro whatsapp for doubts 7021713681
Occupational Therapist for Child Neurological Issues
Aakaar clinic pedneuro NDT SI and Pediatrician
Laxmi residency, Aakaar clinic, shop 25, first floor, Byculla West, Mazgaon, Mumbai, Maharashtra 400027
When parents ask me “what book one should read for autism cure in their kid”:
dont go for reading books, ask me for free whatsapp tips: 91-9869405747
Starting to learn autism to treat Ur own kid, is like digging the well when u are thirsty. Remember “time is key for developing brain, don’t waste it.”
Ask experts, Ask for help, save time. You may be carrying a wrong diagnosis label given by PHD doctors. Remember medical diagnosis (& treatment too) is best and holistically done by medical Doctors…
What an expert has gone through decades of experience, no single book / page or line can give it. Ask an expert for an individualized action plan. Every kid is different.
Read books once your kid’s needs have met, read books mainly to help others. Read books so Taht u write books which doctors can read during their medical curriculum, but save time by asking for expert help.. Save Time Save Brain, Think Brain! Please pass on message to needy parents. When thirsty – and u go digging a well, you may end up in a grave than accidental chest. #DrSK
Prime aim of this post is to make parents understand that Time with The Child is Key. Don’t lose the time running after books when you may learn one tip after reading hundred pages. It’s better to get tips from experts who seen hundreds of cases, getting hundreds of queries solved in single consultation, that looking for chance clue in some book whose story may b different from your kid.
Autism: is it like cerebral palsy?
Neurodevelopmental Pediatrician, Autism Dr Mumbai
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